Archive for September 2011
Good News:
My biopsy results came in…they could not see any cancer cells BUT they could not be definitive because of the trauma it sustained from my “little operation”. They said it was a congenital mole (I was born with it) but they could not determine if it had become atypical. The ulceration was another area where they could not determine definitively if it was due to my attempt of removal or if it was becoming abnormal.
Due to my history with Melanoma and the potential for congenital moles becoming malignant, I have to have an 8mm punch biopsy done. I will have stitches but at least that is all I will have to deal with. This time when they biopsy this specimen, there won’t be any trauma to throw them off.
Note to self: No more “do it yourself” surgeries. Leave it to the professionals. ![]()
As I wait for my biopsy results to come in, I am overwhelmed with anxiety, fear, and stress. I know whatever the outcome is, I am in the Lords arms. The Lord has been with me every step of the way in my life, sometimes carrying me when I’ve been too weak to walk.
I am one who strives everyday to be the best that I can be (no, I’m not in the Army). To not let my emotions of anger or fear take over, but rather learn whats behind them. Once you have an understanding, you can then turn those emotions into peaceful emotions such as love and trust. The key to being a grounded person is realizing the power of acceptance, forgiveness, compassion, understanding, and higher–level thinking.
Stress is a factor in everyone’s life. Each burden you carry is an opportunity for growth—carry yours with grace and dignity.
This week, if my blood work comes in at the levels my doctor feels is safe, I will start taking Accutane. I have cystic acne and have been taking medication to keep it under control. But after my skin cancer doctor removed that black ominous spot, she told me I need to go on Accutane to treat my acne. Accutane is a chemotherapy drug to treat certain cancers, one of them being metastasized Melanoma. Accutane is also used as the last resort for severe cystic acne.
This drug will require monthly blood work to monitor my liver and other levels since this medication can cause some serious permanent health problems.
So for the next 5 months or so, I will be ingesting a chemo drug. Now, all this could change if I am diagnosed with another Melanoma that is greater than Stage 1A.
Yesterday my son Alec came up to me to show me an essay he wrote for one of his classes. As I read his words, I had to fight back tears. I knew he was deeply affected by the news of my skin cancers, but reading his words pierced through my heart. My son went from a 4.0 GPA to a 2.78 GPA in two years. Alec had ambitions of being a Neurosurgeon or a Cardiac surgeon. Now, I am not sure what his ambitions are.
Here is his essay:
Not many people may realize, but in every city, town, school there is a story to be told by the unknown faces we encounter in our daily lives. Our world is a virtual library of stories untold, hidden and kept in secret. When I look around my classroom, I don’t see faces or names; I see books that have yet to be read. Our lives are an unfolding library of stories that are being bound together to create a journey. Each person has a unique story to be told; the story of their life.
In my sixteen years of life, there’s a lot to be told. However, the memory that stands out to me, the one that I will never forget in my years of living, will be the day I found out my mother had cancer. I thought such a thing would never happen to me. Cancer is such a scary word when you first hear it. It floods your mind with images and things you’ve heard on T.V. It floods your brain with death and fear. At first, I didn’t know how to comprehend what my parents had just sat down and told my sisters and me; there was no way for me to collect my thoughts. I was left in the dark, not knowing what to feel, what to think. Then it hit me. Like the time I got in a car accident a few years back; first, you feel a jerking motion, then the confusion sets in and time seems to go slower. When it’s all over, you sit back for a moment, and realize you were just in a collision, and that’s when the panic strikes. For days, I went on without feeling any sign of panic from what I had just learned about my mother. However, when it finally did hit me, it was as if someone had punched me in the gut, and my breath was stolen from me. Tears poured down my face uncontrollably; I sat there feeling useless. Fortunately, I was home in my room when it all happened. I can still remember feeling as if I lost control of every movement in my body. All I could do was cry, all I wanted to do was cry. It seemed like an eternity as I sat there useless, not able to do anything but cry.
In the weeks following, I tried my best to gather the pieces of the broken puzzle into which my heart had transformed. It was the hardest thing to sit in class and force all my emotions into a glass bottle with the lid vacuum-sealed and hope that the bottle did not burst. To try and act as if everything in your life is fine, ordinary; to hide behind a mask glued to your face; to lie to my friends and say “I’m fine, really. Just tired is all” was a task that was constantly approached on a daily basis; it became more of a chore than a task.
Skin cancer may sound minor in comparison to the medical terms ‘brain tumor’ or ‘heart surgery’ but a new meaning is perceived when you put the word ‘melanoma’ in the phrase. The picture changed as I began researching. The horror that consumed me can only be described as a constant battle between worry and fear. Melanoma skin cancer is the deadliest and least treatable skin cancer when it is not caught early. Hours seemed as if they were minutes, while seconds seemed to cease. The images ate away at my brain and latched onto my thoughts, as well as my subconscious. It was like a parasite, invading my head, a parasite whose only purpose was to make my life as miserable as possible. There was absolutely no way for me to relax without any worrisome thoughts drifting around in the vast space of my mind.
My mind is a place that is alien to anyone but me, a place where only I can find sanctuary, a place that I can find myself. However, this parasite intruded into my mind, and I lost my sanctuary, my safe house. My memory was left scarred from the day my parents informed me about the cancer. That memory is a scab, that once was an open wound that was left festering and infected my head with panic and terror. To this day, I am overcome by my emotions and, occasionally, I breakdown. My life is a story that is at its end of chapter sixteen, a story that has barley begun; a story that is scribed in pen. It is only one story that quietly shares the massive library that shelves the books of tens of millions of others.
If I’m diagnosed with my 3rd Melanoma and it’s worse than Stage 1A…how do I tell my children? How the hell do I tell them?
Being in limbo is the worst place to be in any situation. When you are waiting for a biopsy report, it can seem like an eternity. I am currently waiting on a biopsy report on this hard black spot that I found inside a mole.
This mole is only 2cm from my Stage 1A Invasive Melanoma scar and about 2 inches from the actual tumor site. Making this a possible local recurrent Melanoma.
When I spotted this black speck inside of a mole I’ve had for years, I thought maybe it was a dried up blood clot or an ingrown hair or even a splinter. But, when I ripped the top off this slightly raised mole and tried to pull the black spot out, it was attached like it had a root. It also was hard as a rock and did not move. The top of this black spot seemed to be crater like, possibly ulcerated.
I’ve been trying like hell to remain positive and upbeat about this, but the longer it takes to get the results the deeper my fear grows. Back in July I tweeted about a gut feeling I had that wouldn’t go away. My gut feeling was I will be fighting a long and hard battle soon (referring to my skin cancer). I am praying that I am wrong.
I am not a doctor nor a pathologist, but this black spot looks ominous to me. If this thing is a Melanoma, it will be my 3rd one in 3 years. My first one was in 2009, and my 2nd one in 2010.
All I can do right now is pray that I caught it early.
Staging
Revised 2002
Also of importance are the “Clark level” and “Breslow’s depth” which refer to the microscopic depth of tumor invasion.
Melanoma stages:Stage 0: Melanoma in Situ (Clark Level I), 99.9% Survival
Stage I/II: Invasive Melanoma, 85–99% Survival
T1a: Less than 1.00 mm primary tumor thickness, w/o Ulceration and mitosis < 1/mm2
T1b: Less than 1.00 mm primary tumor thickness, w/Ulceration or mitoses ≥ 1/mm2
T2a: 1.00–2.00 mm primary tumor thickness, w/o UlcerationStage II: High Risk Melanoma, 40–85% Survival
T2b: 1.00–2.00 mm primary tumor thickness, w/ Ulceration
T3a: 2.00–4.00 mm primary tumor thickness, w/o Ulceration
T3b: 2.00–4.00 mm primary tumor thickness, w/ Ulceration
T4a: 4.00 mm or greater primary tumor thickness w/o Ulceration
T4b: 4.00 mm or greater primary tumor thickness w/ UlcerationStage III: Regional Metastasis, 25–60% Survival
N1: Single Positive Lymph Node
N2: 2–3 Positive Lymph Nodes OR Regional Skin/In-Transit Metastasis
N3: 4 Positive Lymph Nodes OR Lymph Node and Regional Skin/In Transit MetastasesStage IV: Distant Metastasis, 9–15% Survival
M1a: Distant Skin Metastasis, Normal LDH
M1b: Lung Metastasis, Normal LDH
M1c: Other Distant Metastasis OR Any Distant Metastasis with Elevated LDHBased Upon AJCC 5-Year Survival With Proper Treatment





































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